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Jingdong book

自闭症在英国的诊疗

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自闭症在英国的诊疗

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本书的内容涉及面较广(不分种族、年龄、阶层),主要介绍英国的有关自闭症的发病率及诊疗情况,且有较广泛的综述;还有一些诊疗经验的介绍,对一些个案有较详细的描述;另附有问卷供家长填写,亦可作为医生诊断时的参考。本书可供从事教育、医务、社会工作者参考,对在中小学和幼儿园从事心理咨询工作的教师,以及患者家属也有帮助。
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第一部分 英国对自闭症的认识
1 概况
1.1 对自闭症认识的发展历史
1.2 自闭症的发病率
1.3 对自闭症患者的特殊教育
1.4 对自闭症患者的统计
1.5 英国教育法案修订概况
1.6 英国自闭症服务机构

第二部分 自闭症的诊疗
2 自闭症
2.1 “经典凯纳”自闭症
2.2 爱斯博格综合征
2.3 高功能自闭症
2.4 自闭症病因
3 自闭症的三大障碍
3.1 沟通交流障碍
3.2 社会互动与社会关系障碍
3.3 缺乏想象性思维
4 自闭症患者的特征与表现
4.1 语言问题
4.2 不正常的视觉探查与眼神交流
4.3 行为控制问题
4.4 对感觉经验的不正常反应
4.5 不恰当的情绪反应
4.6 多变的身体机能与发展的不正常
4.7 特殊技能
4.8 行为问题
5 了解爱斯博格综合征
5.1 语言交流的困难
5.2 社会交往的困难
5.3 想象性思维的困难
5.4 其他方面的困难
5.5 爱斯博格综合征的特征
6 自闭症患者常常是视觉思考者
7 自闭症患者的困难行为与“挑衅”行为
7.1 挑衅行为
7.2 困难行为
8 自闭症的特定障碍与应对措施
8.1 吃饭障碍及应对措施
8.2 睡眠障碍及应对措施
8.3 情绪失控障碍及应对措施
8.4 使用卫生间障碍及应对措施
9 对自闭症学生的结构教学法
9.1 结构教学法
9.2 教学方法与策略
10 社会故事与图画式对话
11 精神感悟法
12 自闭症学校的静心教室
附录一:为家长准备的12个问题
附录二:沟通交流检查表
Book Abstract

1.1 对自闭症认识的发展历史 1943年,里奥·凯纳博士在美国为自闭症作出了第一次的经典描述。第 二年,奥地利人汉斯·爱斯博格医生发表了一篇描述带有自闭行为的青春期 少年的论文。这群少年智力水平正常、拥有语言表达能力,但在社交沟通技 巧上存在很大障碍。当时,凯纳博士与爱斯博格医生都没有注意到对方发表 的有关自闭症的论文。直至1990年,爱斯博格的论文才由傅瑞斯翻译成英文 。爱斯博格症(自闭系列症中的一种)于1994年被正式归入《美国精神疾病诊 断与统计手册(第四版)》,逐渐为英国人所认识。20世纪50至60年代,自闭 症被错误地认为是一种心理疾病,其病因被归结为由情感冷漠的高智商父母 的拙劣养护技巧所致。这种观念在60年代初期被一个新的研究结果否定,该 结果证明了自闭症是婴儿初期的生理疾病。70年代末,英国博士佛尔斯丁和 卢特进一步发现,自闭症患者的家庭中存在一个明显的基因链,并且这个基 因链会影响自闭症的发病率。 90年代初,研究人员开始辨别出携带与自闭症相关联的基因物质染色体 。目前,此基因研究仍在世界范围內继续进行。在英国,许多研究中心都致 力于对自闭症的研究,并拥有广泛的资金来源,包括来自中央政府、私立机 构或慈善机构等。 目前对自闭症的研究有许多不同的着眼点,例如: (1)研究病症与特征:制订相应的诊断标准。 (2)研究可能致病的原因:分析精神与神经的相异之处,更广泛地从饮 食、环境、基因;疫苗伤害等方面深入研究。 (3)探索干预方法:包括药物、教育干预治疗等。 在英国,自闭症儿童通常是由儿科医生、家庭医生或教育心理学家鉴别 诊断的。一旦确诊,家长们可以获得一系列的服务与帮助。当然,每个孩子 获得的帮助,由于所在区域不同而有所差别。 英国实行地方分权的教育制度,各地方教育局的做法各有不同,常因法 案的改变而改变其措施和服务,因此,某一地方的服务措施并不能代表整个 英国的情形。英国虽是由英格兰、威尔士、苏格兰以及北爱尔兰所组成,但 因后两者有其独特的立法与行政制度,所以在谈英国教育时多以前两者为主 。 在英国的特殊儿童教育体系中有专门针对自闭症儿童的教育计划。政府 设置专门的自闭症学校,接收已被确诊为自闭症患者的学生;或在常规学校 内设立特殊教育资源中心,中心内备有针对自闭症儿童教育的专门设备与特 教人员,为在普通班就读的自闭症学生提供支持性服务。 政府在培养特殊教育师资方面强调实施统合教育。师范院校内设有专门 的了解自闭症教育与训练自闭症学生的特殊教育课程。统合教育的型态依其 层次高低分成三类统合:地域化统合、社会性统合、功能性统合。 1.2 自闭症的发病率 对自闭症的判断主要通过观察儿童行为。患病孩子的行为表现并不一样 ,即使同一个孩子随着年龄增长,其行为表现方式也会随之改变。自闭症行 为改变深受病症严重程度、语言接收程度及患者性格的影响。 长期研究表明,世界范围内的自闭症发病率相近,这说明自闭症不受种 族或文化影响。当1943年凯纳论文发表时,自闭症被认为是一种罕见病症, 大致每1万名儿童中仅2至4名患儿。自至20世纪90年代以后,人们逐渐发现 ,世界范围内的自闭症发病率不断上升。近年有文献估计,目前每1万名儿 童中有高达60人患有此症。英国、加拿大和美国的相关研究表明,这些地区 的自闭症发病率在过去10年中显著上升。自闭症现在已经被视为比唐氏综合 征、儿童癌症更为普遍的疾病,通常男孩比女孩更容易患。从现有资料来看 ,患凯纳自闭症的男女比例为4:1;患爱斯博格综合征的男女比例大约为9:1 。如果不对自闭症进行分类,这个男女比例将上升至10:1。目前为止并不清 楚男女比例失衡的原因,世界各地正对此展开研究。尝试从不同角度提出一 些有意义的解释。对自闭症发病率急剧增加的解释大致分为以下几类: (1)世界范围内对自闭症关注程度的提高、诊断技术的发展和专家服务 意识的不断提升,较有效地提高了识别患有各类不同自闭症的儿童的能力。 (2)诊断流程得到改良,使自闭症儿童能更快更有效地被识别出来。 (3)除了凯纳的定义,自闭系列症有了更广泛的定义。由于新增定义可 以用来确认自闭症的表现形式,更多的患者在相关定义的诊断标准下被发现 或确认。 (4)出现了更为先进的信息收集和阐释方法,这些信息被用于更为精准 地计算发病率。 目前,有关对自闭症的可能致病原因的研究还没有得出与环境有关的总 结性结论,这些领域的研究正在进行之中。但许多国家的研究结果都发现, 家庭基因的遗传影响是很重要的原因之一。某些家庭似乎存在着一条很强大 的自闭症基因链,不间断地遗传下去,因此,有自闭症患病家史的孩子更容 易患此症。并且,自闭症患儿的兄弟姐妹往往也存在某种程度的社交或学习 困难,尽管他们并不属于患者行列。P1-5

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